The Myeloma Crowd offers three areas of support:
For rare diseases like multiple myeloma, the secret to a cure may be found in patient lab values and disease genetics. Our data solutions will offer immediate help for patients searching for treatment answers. Collecting and aggregating all available patient data into formats that researchers can use is also an extremely important and efficient way to accelerate research.
When Jenny Ahlstrom was diagnosed with multiple myeloma in 2010, she anxiously searched for treatments and research for a cure. She noticed gaps in solutions for patients – most importantly the need for simplified information that would help patients obtain better outcomes.
Jenny noticed that childhood cancer clinical trials had 85% participation rates while adult cancers had dismal 3-5% participation rates. Many research projects were not completed because scientists could not find willing patients with these types of rare diseases. She set out to help educate patients and encourage them to participate in trials in order to move research forward at a faster pace.
Through her experience in systems engineering and marketing, as well as her husband Paul’s experience in entrepreneurship, Jenny saw an opportunity to empower patients to take action toward accelerating cures for rare diseases.
The Myeloma Crowd is a division of the HealthTree Foundation and is a registered 501(c)3 non-profit, tax ID 45-5354811. For donations, please donate online to the MCRI project here or mail checks to:
Myeloma Crowd / HealthTree Foundation
PO Box 1286
Draper, UT 84020
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