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About Allyse Shumway

MyelomaCrowd Editorial Contributor. Studying Nursing. Daughter to a parent with cancer.

Muscles for Myeloma Columbus 5K and 1 Mile Walk 2019 – June 1 at Wolfe Park

We are delighted to host the 3rd annual Muscles for Myeloma 5K and 1 Mile Walk, Columbus, Ohio, honoring the Move MMORE Legacy, at Wolfe Park.  Register Now About Muscles for Myeloma We’re building Muscles for Myeloma to help myeloma patients get moving and to help raise funds for myeloma research. Fitness matters to [...]

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May 18, 2019, Myeloma Crowd Round Tables: St. Louis, Missouri

Myeloma Crowd Round Tables are day-long patient education meetings featuring world-class experts to assist patients and caregivers to make decisions about their treatment and care.The presentations help make the most difficult issues in myeloma research and treatment—high-risk, relapsed and refractory disease—understandable in plain language.  Myeloma Crowd Round Tables provide patients and caregivers with updated information to help make informed treatment decisions.

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Donate on #Giving Tuesday and Help Save Lives for Patients with Multiple Myeloma

Donate to the MCRI Today It's that time of year! Giving Tuesday is tomorrow, November 27, and is an opportunity for you to advance a cure by donating to leading edge multiple myeloma research. This year, the Myeloma Crowd would like to invite you to donate to our Myeloma Crowd Research Initiative - a [...]

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Oct 29 – Nov 2: AmazonSmile Gives 5% Back to MyelomaCrowd

For all purchases made between October 29 - November 2, Amazon Smile will give 5% of your purchase back to the Myeloma Crowd. Visit smile.amazon.com today, choose the “CrowdCare Foundation” as your designated foundation, and start shopping! This offer only lasts for Myeloma Awareness Month, so sign up today and make a difference. What is AmazonSmile? [...]

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November 17, 2018, Myeloma Crowd Round Tables: Scottsdale, Arizona

Myeloma Crowd Round Tables on High-Risk Disease are day-long patient education meetings featuring world-class experts to assist patients and caregivers to make decisions about their treatment and care.The presentations help make the most difficult issues in myeloma research and treatment—high-risk, relapsed and refractory disease—understandable in plain language.  Myeloma Crowd Round Tables provide patients and caregivers with updated information to help make informed treatment decisions.

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November 10, 2018, Myeloma Crowd Round Tables: Buffalo, New York

Myeloma Crowd Round Tables on High-Risk Disease are day-long patient education meetings featuring world-class experts to assist patients and caregivers to make decisions about their treatment and care.The presentations help make the most difficult issues in myeloma research and treatment—high-risk, relapsed and refractory disease—understandable in plain language.  Myeloma Crowd Round Tables provide patients and caregivers with updated information to help make informed treatment decisions.Learn from top myeloma experts about aggressive and high-risk disease and what you can do to stay one step ahead for your best outcomes.  This is a great opportunity to learn from top myeloma experts about what you and your physicians can do to stay one step ahead and achieve your best outcomes.  Extensive time for audience questions is included in every Round Table.

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A New Tool Called HealthTree for Multiple Myeloma Patients Is Coming to the East Coast

The Myeloma Crowd is proud to introduce a new online tool for multiple myeloma patients called HealthTree. Join us at a location below and please RSVP (so we can plan for food).  We’ve spent several years in research and development to launch this revolutionary patient-led community that will both improve myeloma patient outcomes and accelerate [...]

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Patient Power: Important Upcoming Events in July

Patient Power has a lot of exciting webinars in July. Register today to reserve your spot for the latest news on multiple myeloma! July 20, 2018: Live Webinar with Patient Advocate, Jack Aiello Are you a myeloma patient or care partner wanting to know the latest treatment news and how to pick the right one? [...]

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Patient Power: Taking a Drug Holiday for Multiple Myeloma Patients

Many multiple myeloma patients are on some form of maintenance therapy that typically includes a chemo-type drug (like Revlimid). Some are on a one or two-year maintenance plan; others are opting for continual maintenance. For those of us who have taken these drugs, we live with those side-effects: chemo brain, fatigue, neuropathy, gastrointestinal problems, and much more. So [...]

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Patient Power: Cherie Rineker’s Post-CAR T-Cell Trial for Multiple Myeloma

Multiple myeloma patient Cherie Rineker gives Patient Power an inside look into her experience with CAR T-cell clinical trial. She shares the highs and lows of being in a clinical trial and provides insight into how clinical trials can provide tomorrow's medicine today. "I have done 13 different treatments for multiple myeloma. By the [...]

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June 25, 2018: Swing for a Cure Pro-Am Golf Tournament in Detroit, MI

It is our pleasure to invite you to participate in Myeloma Crowd's 1st Annual Swing for a Cure Pro-Am Golf Tournament on Monday, June 25, 2018. This event is a combination of efforts between the Myeloma Crowd and Runyon Family Foundation to raise necessary funds for multiple myeloma research while playing golf at the beautiful [...]

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Patient Power: How Can Myeloma Patients Combat Neuropathy?

 How can myeloma patients combat the pain and numbness caused by neuropathy? Are there alternative treatment regimens? Patient Power meets with a panel of experts, including Dr. Frits van Rhee, Dr. Guido Tricot, Dr. Faith Davies and Dr. Gareth Morgan,  discussing ways  to work with your medical team to help reduce the intensity of [...]

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Myeloma Crowd Cycling Club – Join Us Today!

We'd like to invite you to join the new Myeloma Crowd Cycling Club! Avid cyclist and myeloma patient, Richard Hite, and the Myeloma Crowd team created this club in an effort to encourage patients and cyclists everywhere to "ride for a cure."  The Myeloma Crowd Cycling team will be participating in multiple cycling events throughout [...]

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March 12 – March 31: For Every Purchase Made, AmazonSmile Will Give 1.5% Back to Myeloma Crowd

For all purchases made between March 12 – 31, Amazon will give 1.5% of your purchase back to the Myeloma Crowd. Visit smile.amazon.com today, choose the “CrowdCare Foundation” as your designated foundation, and start shopping! This offer only lasts for Myeloma Awareness Month, so sign up today and make a difference. What is AmazonSmile? AmazonSmile [...]

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Can Daily Exercise Impact Transplant Candidacy for Myeloma Patients?

Jim Bond is a 20-year myeloma survivor. After his third transplant (two auto and one allo), Jim was told that "he was done" and should go to hospice care. Although the odds were against him, Jim decided to enter the first Velcade clinical trial, which helped him live longer. But his fight didn't end there [...]

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What is CAR-T Cell Therapy? 9 Things To Know

Originally seen on the MD Anderson website BY CYNTHIA DEMARCO CAR-T cell therapy is a new type of cancer treatment offered at MD Anderson through clinical trials and FDA-approved standard of care cell therapy products. But what exactly is CAR-T cell therapy? And who should consider it? We spoke with Sattva Neelapu, M.D., to learn more. Here’s what [...]

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Attitude Is Everything: Moving Past a Myeloma Diagnosis

"A positive attitude through your treatment and after is most important. It's like putting on your 'warrior armor' everyday." - Myeloma Patient, Karen Fore Many myeloma patients have similar experiences and features of their disease, but how each person chooses to live with their condition makes all the difference in their journey. Learn to live [...]

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May 5, 2018, Myeloma Crowd Round Tables: New York, New York

Register Now Myeloma Crowd Round Tables on High-Risk Disease are day-long patient education meetings featuring world class experts to assist patients and caregivers to make decisions about their treatment and care. The presentations help make the most difficult issues in myeloma research and treatment—high-risk, relapsed and refractory disease—understandable in plain language.  Myeloma Crowd Round [...]

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April 14, 2018, Myeloma Crowd Round Tables: Charlotte, North Carolina

Register Now Myeloma Crowd Round Tables on High-Risk Disease are day-long patient education meetings featuring world class experts to assist patients and caregivers to make decisions about their treatment and care. The presentations make the most difficult issues in myeloma research and treatment—high-risk, relapsed and refractory disease—understandable in plain language.  Myeloma Crowd Round Tables [...]

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Flu Season Tips for Cancer Patients

Originally seen on the Fred Hutchinson Cancer website By: Mary Engel Flu is miserable enough for someone who is otherwise healthy. It can be devastating for people whose immune systems have been weakened by cancer or treatment or both. With flu dominating the headlines, we asked two infectious disease specialists at Fred Hutchinson Cancer Research [...]

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Patient Power: How to Maintain Emotional Equilibrium When You Have Myeloma

How do you and your family find an emotional equilibrium, so you can live positively with cancer? Cancer treatment can come with a heavy emotional load. Andrew Schorr speaks with cancer patients and care partners Danny Parker (myeloma patient), Lori Puente (husband was diagnosed) and Robin P. Katz (social worker) who share their perspective on [...]

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Muscles for Myeloma Columbus 5K and 1 Mile Walk, June 2 at Wolfe Park

We are delighted to host the 2nd annual Muscles for Myeloma 5K and 1 Mile Walk, Columbus, Ohio, honoring the Move MMORE Legacy. The MMORE Foundation created a well-loved event at beautiful Wolfe Park in support of multiple myeloma research. We are grateful for the opportunity to continue this race and the funding of [...]

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Forgetful about Taking Your Medication? Download the Medisafe App.

Do you regularly forget to take your medication? Medication sitting unused in the cabinet doesn’t do any good for patients to improve their health or battle disease. And it's bad for everyone who is paying for unused drugs: patients, doctors, insurers, and even the pharma companies who made the drug.  Medisafe is a complete continuum-of-care [...]

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Muscles for Myeloma 2018

Fitness matters for myeloma patients who are given treatments based on their fitness levels (fit, unfit, or frail). Patients who are the most fit live longer because they are prepared to access the best treatments, like stem cell transplant and triple therapies. But you don't need to run marathons to have a healthy lifestyle. Even [...]

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Christmas Shopping on Amazon? Sign Up for AmazonSmile, and Amazon Will Donate to Myeloma Crowd

Shopping on Amazon this Christmas? Don't forget to register for AmazonSmile to support the Myeloma Crowd! It's quick and easy, and once you sign up, Amazon will donate 0.5% of all AmazonSmile purchases back to the CrowdCare Foundation. What is AmazonSmile? AmazonSmile is a simple and automatic way for you to support your favorite charitable [...]

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Burgundy Ball – Mission for a Cure in Myeloma, February 3, 2018, Columbus, Ohio

Purchase Ticket On February 3, 2018, the Myeloma Crowd is hosting an inaugural Burgundy Ball - Mission for a Cure in Myeloma, honoring the legacy of the MMORE Foundation's instrumental work in funding myeloma research. The Burgundy Ball will benefit The Ohio State University Comprehensive Cancer Center - Arthur G. James Cancer Hospital and [...]

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Survival Rates Increase Faster Than Costs in Myeloma

Article Source: CureToday BY BRIELLE URCIUOLI For people with multiple myeloma, dollars spent on treatment are being stretched farther than they used to be, a recent study shows. The study, published in the Journal of Clinical Oncology, found that multiple myeloma survival rates are increasing faster than treatment costs. The research was a retrospective analysis [...]

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Utah Researchers Find that Fat Cells May Fuel Cancer

Article Referenced: Desert News Does obesity and fat cells have a connection to cancer growth? According to Cornelia Ulrich, and her team of experts at the University of Utah, the answer is yes. Cornelia Ulrich is the Senior Director of Population Sciences at the Huntsman Cancer Institute at the University of Utah. She specializes in lifestyle [...]

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When Myeloma Patients Relapse After Becoming Refractory to Lenalidomide

BY PAUL KLEUTGHEN Several studies have been published recently that present the benefits of MM therapy that includes lenalidomide. A recent study in the journal Blood publishes results of a therapy option when patients become refractory to lenalidomide. The study defines ‘refractory’ as relapse of disease on or within 60 days after stopping treatment. The core [...]

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October 14, 2017, Myeloma Crowd Round Tables: Phoenix, AZ

Register Now Myeloma Crowd Round Tables are day-long meetings that provide patients and caregivers updated information so that they are able to make decisions about their treatment and care. What should myeloma patients do at relapse?  Or when they become refractory to treatments?  Learn from top myeloma experts about aggressive and high-risk disease and [...]

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Multiple Myeloma and CAR T Cell Symposium at Huntsman Cancer Institute – October 14

On October 14, the Huntsman Cancer Institute will hold their Second Annual Multiple Myeloma Symposium in Salt Lake City, Utah. The Symposium "provides an overview of the most recent developments in the field of myeloma therapy." Their will also be a forum to demonstrate and discuss the Institute's multidisciplinary approach  to myeloma with a variety [...]

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KSL News: Utah Family Turns Rexburg Eclipse Camp Site Into Fundraising Tool For Cancer Treatment

Originally seen on KSL.  Article by Andrew Adams, KSL TV REXBURG, Idaho — There are a lot of open fields where campers can park an RV, pitch a tent and watch Monday’s total eclipse. But one family in Rexburg is drawing interest from across the country and around the world for the cause it represents. With [...]

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Myeloma Crowd Raises $17,000 at Eclipse Camp in Rexburg, Idaho

In early July, Jenny Ahlstrom and her family had "a crazy idea" for a Myeloma Crowd fundraiser. After hearing about the upcoming Solar Eclipse from friends and family, the Ahlstrom's wondered if it would be possible to rent out farmland to the public and raise money for the Myeloma Crowd Research Initiative. They reached out [...]

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How to Prevent Infections After Bone Marrow Transplant?

According to Cancer Therapy Advisor, "Infection is a known risk for early death among patients with myeloma." Especially after a bone marrow or stem cell transplant, your immune system is weak and highly prone to infections. While your white blood cell count may be considered "normal", during this time your immune system is recovering and [...]

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Malnutrition Among Cancer Patients

HemOnc Today article referenced. Good nutrition is important - especially if you are battling cancer. Cancer itself, and cancer treatment, can affect the appetite and how the body digests, absorbs, and uses food. When the body is depleted of essential nutrients, it becomes malnourished. Malnutrition is an epidemic affecting many cancer patients, and is the cause for [...]

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Using Artificial Intelligence to Fight Multiple Myeloma

Original video found on "60 Minutes" The CBS News program "60 Minutes" highlighted artificial intelligence and how it is affecting the cancer community. John Kelly, the head of research at IBM, commented: "In the past few years, artificial intelligence - or A.I. - has taken a big leap, making important strides in areas like medicine and [...]

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Can Donating Platelets Save a Cancer Patient’s Life?

Chemotherapy has many side effects, and one of those includes lowering the blood count in a patient's body. As the blood count drops, the platelets that circulate within the blood also decrease. The lack of platelets can be dangerous for any patient because these tiny cells are important for helping the body form clots to [...]

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Clinical Trial: Drug that Stops Myeloma Progression with Pomalidomide in Relapsed or Relapsed and Refractory Multiple Myeloma

TGF-β, a multifunctional cytokine, is produced in multiple myeloma cells and cells in the bone marrow environment and stimulates myeloma progression. A new drug called  TEW-797 targets this cytokine and kills myeloma cells alone and with other myeloma drugs. “Our data demonstrate that TEW-7197 effectively modulates the MM TME and is associated with a potent [...]

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Cost of Care: ASH Applauds Access to Treatment Bill

This Press Release was originally published by ASH. ASH President Applauds Introduction of Patients’ Access to Treatment Act (WASHINGTON, June 23, 2017) — Yesterday, Representatives David McKinley (R-WV) and G. K. Butterfield (D-NC) introduced the Patients’ Access to Treatment Act (H.R. 2999) in the House of Representatives. The legislation aims to remove the burden of excessive cost [...]

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How To Pick A Multiple Myeloma Doctor

Choosing a doctor to treat your multiple myeloma is one of the most important decisions you will make. Although a hematologist or oncologist can administer care, myeloma patients will live longer, according to the Mayo Clinic, if they are seen by a multiple myeloma specialist. Those who treat myeloma exclusively are able to stay up-to-date [...]

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Is There one Sugar That is Better (or less bad) Than Others for Cancer Patients?

Scientific research is inconclusive on whether sugar impacts the growth of cancer. It doesn't mean, however, that cancer patients should go hog-wild on sweets. Myeloma patients, for example,  should be cautious with sugars especially when taking steroids (as steroids can induce diabetes or sugar sensitivities). Jean Lamantia discusses the impact of added sugars on your [...]

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