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Cynthia Chmielewski

About Cynthia Chmielewski

Retired teacher, myeloma survivor, patient advocate and Twitter myeloma leader.

Addressing Disparities in Myeloma Care

By Cindy Chmielewski @MyelomaTeacher I arrived for the first time at the Chicago ASCO annual meeting with the theme Caring for Every Patient, Learning from Every Patient. I received a Conquer Cancer scholarship to attend this conference. My ASCO experience started by attending an education session entitled Many Shades of Disparities in Myeloma Care. The [...]

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Racial Disparities in Multiple Myeloma

Originally written by myeloma patient and advocate Cindy Chmielewski. Recently, I had the privilege to travel to New Orleans to attend the American Association for Cancer Research’s (AACR) Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved Conference. I was part of the Scientist-Survivor Program (SSP) – a program I would highly recommend to anyone [...]

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Patient Power: A Crisis in the Myeloma Community

BY CYNTHIA CHMIELEWSKI Recently, I received an urgent text message from one of my dear friends.  “Did you hear LLS (the Leukemia and Lymphoma Society’s) Co-Pay Assistance Program is closed to multiple myeloma due to the demand? Is this true? Have you heard? I count on the LLS.” At that point I hadn’t heard anything [...]

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What Liz Would Do & What We Can Do For a Faster Myeloma Cure

BY CYNTHIA CHMIELEWSKI Myeloma warrior, fierce advocate and my friend Lizzie passed away last week. I am still shocked and saddened by this news.  Lizzie was young. She was a fighter and well educated about myeloma. Lizzie was full of life! She sought the advice of several myeloma specialists and participated in clinical trials. She [...]

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The Power of Twitter in Multiple Myeloma by @MyelomaTeacher

BY CYNTHIA CHMIELEWSKI Blood Cancer Awareness Month Tech Tuesday Twitter is a greatly misunderstood social media tool.  When I suggest to someone to join Twitter I usually get the response,”I don’t want to know what my friends are eating for dinner.” This might have been true when Twitter first appeared on the social media [...]

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