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Home / LIFE WITH MYELOMA
By Jennifer Ahlstrom | Posted - Mar 20th, 2019

 

 

 

 

HealthTree for Multiple Myeloma Featured on the Today Show

March 20, 2019

The Today Show featured Jenny and Paul Ahlstrom as they described a new patient platform they created called HealthTree. The mission of HealthTree is to help doctors, researchers and patients better collaborate around each patient's treatment options, with the hope that connecting the patient data will accelerate a cure for myeloma. 

A cancer diagnosis is a panic attack for anyone, but after the initial shock wears off, patients have a choice in how they respond. 

"You can either let it destroy, you can let it define you... or you can let it strengthen you and look at it as an opportunity to serve other people," says Jenny Ahlstrom, who was diagnosed with myeloma and is now raising awareness for the rare cancer.

HealthTree is a tool to help myeloma patients become their own best advocates. HealthTree can help patients see treatment options they can consider, find clinical trials they can join and will help aggregate myeloma stories from thousands of patients to help doctors and researchers develop new hypotheses. What treatment options are the best for which type of patient? All myeloma is different and should be treated individually. That can only happen when doctors can start to see patterns of treatments that work or don't for each type of patient. 

Patients hold the key to gather their information that is sitting in 11 different databases today. And only 8% of our information is stored in a hospital's electronic health record, so a patient is the only one who can pull it all together and then share it in an anonymous way with researchers who can use it to identify potentially curative hypotheses. 

If you are a myeloma patient, please join HealthTree today! Not only will it help you navigate your care today, your myeloma story and that of thousands of others will help us all find a cure faster. 

Thank you to the Today Show including Sheinelle Jones, Al Roker, Dylan Dryer, and Craig Melvin for bringing focus to the important new patient platform! 

 

Find more myeloma news and information on www.myelomacrowd.org
 
Jennifer Ahlstrom
About the Author

Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation.

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