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    • MCTV
    • Multiple Myeloma News
    • Jan 31, 2016

    Introducing Myeloma Crowd TV: A News Show for the Multiple Myeloma Patient Community

With all of the activity in multiple myeloma research, it can be tough to keep up – even for the myeloma specialist. Last year is a prime example with over 7 new FDA drug approvals in a single year. New and exciting research is happening in oral treatments, in immunotherapies like CAR T cell, vaccines and monoclonal antibodies, and in many other pathways. What a great problem to have!

To keep patients informed about the latest research, important events and issues of the day, we are announcing a new program – Myeloma Crowd TV. The show is intended to cover current topics for the multiple myeloma patient, caregiver and family community in easy-to-understand language. Educated and empowered patients ask better questions of their doctor, have more involvement in directing their care and typically have better outcomes than their uninformed peers.

We hope you enjoy this and future episodes. If you have ideas about topics you would like to see covered in the show, send us an email to info@crowdcare.org.

Here’s to greater progress and better outcomes in 2016!
Subscribe to the Myeloma Crowd You Tube Channel

About Author

Jenny A

Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio and the CrowdCare Foundation.

9 Comments

  1. Gary Myers Vaughn February 1, 2016 at 10:18 am

    Thank you Jenny……..so many of us are watching, learning, and have our fingers crossed for new treatments.

    • Jenny A
      Jenny A February 2, 2016 at 1:02 am

      Thanks Gary! We all need and want a cure. That’s the ultimate goal for sure.

  2. Robbie February 1, 2016 at 1:55 pm

    Thanks for this informative session!

    • Jenny A
      Jenny A February 2, 2016 at 1:02 am

      Thanks Robbie! Glad you liked it 🙂

  3. Nancy Tieszen February 1, 2016 at 11:59 pm

    This is wonderful, Jenny! There is a much bigger impact and it is easier to absorb information presented in a video format. I have been reading posts and blogs of yours, Gary and Pat but to see you myeloma superstar advocates on film is very nice. Thanks for all you continue to do for myeloma patients.

    • Jenny A
      Jenny A February 2, 2016 at 1:01 am

      Thanks Nancy! If you have ideas you would like covered, please feel free to weigh in 🙂

  4. Martha Cates February 2, 2016 at 3:56 pm

    My brother has just been diagnosed with multiple myeloma located in his spinal cord, lesions on his spine and also protein deposits too. Surgery was done placing two rods on spine (one on each side), now in Siskin Rehab in Chattanooga. Blood pressure drops causing little or no therapy treatments. He is taking capsule treatment plus injection once a week…Any other patients with similar treatments…this has been since the last of Dec. 2015…Any suggestions appreciated…Thanks, Martha Cates

  5. John Pierson March 4, 2016 at 2:42 pm

    Jenny, I just have to congratulate you on all the things you do to help us myeloma patients better understand this disease. The TV show is an excellent addition to that effort, but how do you find the time? Please keep up the effort. You inspire me to learn more about the exciting new treatments and become more involved in my own treatment.

    • Jenny A
      Jenny A March 7, 2016 at 12:12 pm

      Thanks John! I want us all to survive this and this is my way of putting my grain of rice on the pile. Glad it is helping you!

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