By Jennifer Ahlstrom | Posted - May 14th, 2020

 

 

 

 

Karyopharm Donates Free Masks for Multiple Myeloma and Other Patients

Karyopharm, maker of selinexor (XPOVIO) used in myeloma treatment has donated 60,000 medical masks in partnership with the Myeloma Crowd, Family Reach and the Leukemia & Lymphoma Society. The initiative will support some of the most vulnerable individuals impacted by the ongoing COVID-19 pandemic through the three patient-focused organizations. 

The Myeloma Crowd will distribute the free masks to verified multiple myeloma, MGUS and smoldering myeloma patients. This generous gift by Karyopharm will help myeloma patients take necessary precautions as they continue to protect their health with procedures they are already familiar with - masking, handwashing, extra disinfection, social distancing and avoiding unecessary trips.  

To receive the free masks, please do the following:

  • Register in HealthTree (www.healthtree.org)
  • Enter your diagnosis (under My Diagnosis) and your address (under My Profile) and a set of 5 sterile sealed masks will be mailed to you automatically.
  • No email or chat requests are needed on your part 
  • Existing HealthTree users with an address already in their profile will automatically be mailed a set of 5 masks.

The Myeloma Crowd will also be distributing the masks to myeloma facilities in dire need of PPE. 

 

Please Send Me Masks

 

“With often already compromised immune systems, patients with cancer are one of the most at-risk groups to be impacted by the ongoing COVID-19 pandemic,” said Sharon Shacham, PhD, MBA, President and Chief Scientific Officer of Karyopharm. “As a trusted partner within the cancer care community across the U.S., as well as a leader in the healthcare ecosystem based in Massachusetts, Karyopharm is pleased to be partnering with three amazing patient-centric organizations to help improve the safety of cancer patients, their families, and supporting healthcare workers.”

 

The Myeloma Crowd is excited to partner with Karyopharm on this initiative to deliver necessary and life-saving personal protection equipment to patients, their families, and healthcare providers. We are impressed with Karyopharm's dedication to improving the lives of patients battling multiple myeloma and other cancers. We hope that together we can continue to help improve the health outcomes for those impacted by this common form of blood cancer during the COVID-19 pandemic.

Karyopharm has also opened a clinical trial for all COVID-19 patients using low dose selinexor to combat the severe inflammatory response seen by those hospitalized. Selinexor may also have anti-viral properties to combat the virus. This clinical trial is currently enrolling patients from across the U.S., Europe, and Israel.

 

 
Jennifer Ahlstrom
About the Author

Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio and the CrowdCare Foundation.

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Add a Comment


- Thanks for the free masks

Reply from Jennifer - You are welcome!

Anne - Patient since May 22/18

Reply from Jennifer - Anne, if you would like free masks, please register here: www.healthtree.org. Fill out your diagnosis (My Diagnosis) and your address (My Profile) and we will mail them to you automatically.

Sonja - Thank you the free masks! What a great blessing!

Reply from Jennifer - You are welcome!

 

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