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Finding Balance with New Routines

LIFE WITH MYELOMA - September 17, 2020

September is Blood Cancer Awareness Month. To celebrate the Month, the Myeloma Crowd is running a 30 day Muscles4Myeloma Fitness Challenge. Get moving... Read More

Coping with Cancer Anxiety

LIFE WITH MYELOMA - September 09, 2020

Anxiety (worry) is a natural feeling when you or a loved one is affected with a myeloma diagnosis.  You will often feel a lack of control and be overwhelme... Read More

When and How to Get Vaccinated After Myeloma Treatment

LIFE WITH MYELOMA - September 01, 2020

Infections are still the most common cause of death for multiple myeloma besides the disease itself. Even at the MGUS stage, infection risk is already increased... Read More

Honoring a Powerful Myeloma Advocate, Cheryl Boyce

LIFE WITH MYELOMA - September 01, 2020

Cheryl Boyce, a pioneering leader in minority health education, advocacy and awareness and a 22 year survivor of multiple myeloma, passed away on August 25, 202... Read More

Myeloma Coach Vicki Jones Reflects On 16 Years With Myeloma

LIFE WITH MYELOMA - August 26, 2020

BY VICKI JONES I was diagnosed in June of 2004 at the age of 51. Not MGUS, not smoldering, but 86%-plasma-cells, 3600-IgA, smack dab in-your-face big time Mu... Read More

Myeloma Coach Darlene Balduini Finds Strength in The Crowd

LIFE WITH MYELOMA - August 19, 2020

I was diagnosed first with Smoldering Myeloma in 2018.  After a second opinion I was more accurately diagnosed with Monoclonal Gammopathy of Undetermined s... Read More

Real World Update on COVID and Myeloma From Five NYC Myeloma Centers

LIFE WITH MYELOMA - August 19, 2020

Researchers from five different myeloma academic centers in New York City joined together to study the impact of COVID-19 on multiple myeloma patients (MSKCC, M... Read More

Why I Care About Minimal Residual Disease (MRD) Testing with Relapsing Myeloma

LIFE WITH MYELOMA - August 17, 2020

By John Dwyer (name changed to protect privacy) Minimal Residual Disease (“MRD”) testing is a relatively new testing method for evaluating the de... Read More

Having Good Insurance can be Dangerous to Your Life and Your Wallet

LIFE WITH MYELOMA - August 13, 2020

I was going through some papers after a recent move and came across an old Explanation of Benefits (EOB) for one of my hospital's visits.    ... Read More

What to Eat if You Have Multiple Myeloma

LIFE WITH MYELOMA - August 11, 2020

There aren’t any proven diets to treat multiple myeloma. However, there are specific nutritional strategies that you can use to treat common symptoms, tha... Read More

Vitamin D Levels Impact Myeloma Patient Outcomes After Transplant

LIFE WITH MYELOMA - August 10, 2020

The Myeloma Crowd published a post a few months ago summarizing a study that indicated the benefit of ‘normal’ Vitamin D levels in circulating plasm... Read More

Myeloma Warrior Patti Warrens Creates new Myeloma 5k Race in Fayetteville, Ohio August 29th

LIFE WITH MYELOMA - August 07, 2020

The Muscles for Myeloma 5k and 1m walk/run has been a type of event that has brought the community of Columbus, Ohio together for years. This year, myeloma warr... Read More

Newly Diagnosed? The Myeloma Crowd is here for you!

LIFE WITH MYELOMA - August 06, 2020

Are you or someone you know newly diagnosed with myeloma?  When my husband Richard (pictured above waiting to receive his first Velcade injection) was... Read More


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