Patient Power hosted a recent interview with a panel of multiple myeloma patients to discuss valuable advice to help others navigate their journey with cancer. The 7 myeloma patients offered many tips for coping with a new myeloma diagnosis: Advocate for Yourself It’s important to advocate for yourself in more than just your health. Myeloma[...]

So you have multiple myeloma?  Most people have never heard of myeloma, so if you are a typical patient, it’s usually a shocking and overwhelming diagnosis. It becomes a journey, including a maze of  financial worries.  This blog post is meant to assist you in getting through this financial maze! Usually, people obtain private insurance[...]

I remember this day like it was yesterday. This picture was taken in early spring 2012, and almost became the cover of my book “A Pilgrimage without End, How Cancer Healed my Broken Heart.” A friend and I decided to climb to the top of Red Mountain. Red Mountain is a prominent summit near the[...]

C0-Pay Assistance – The Myeloma Patient Life Raft I have heard from many patients in the United States and they frequently voice fear and concern on how they will afford their medications, doctor and hospital bills. This should not happen in the richest county in the world, and I believe most people can afford treatment[...]

Stand Up To Cancer (SU2C) hosted it’s 9th annual Scientific Summit in Santa Monica, CA. SU2C is a non-profit funding important cancer research and was started in 2008 by a group of women who had been affected by cancer and believed that by merging the resources of the media and entertainment industries into a single operation[...]

On October 14, 2018, a Myeloma Crowd Round Table meeting was held in Scottsdale, AZ at the Mayo Clinic featuring three myeloma experts, including: Rafael Fonseca, MD, Mayo Clinic Scottsdale Gareth Morgan, MD, FRCP, FRCPath, PhD, University of Arkansas Myeloma Institute Leif Bergsagel, MD, PhD, Mayo Clinic Scottsdale Multiple Myeloma: A Historical Perspective Dr. Leif[...]

Multiple myeloma advocate Cherie Rineker has been a myeloma patient for 6 years. Although she has received many treatments that fall under the category of modern medicine, Rineker’s background is based in holistic health.  “I thought doctors and medicine were evil, because I had been taught that by my mother…since I was a little kid,[...]

Being proactive about your myeloma care is essential in getting your best outcomes. The Myeloma Crowd interviewed Dave Winfield and Don Baylor Jr. to share how Don Baylor handled the highs and lows of multiple myeloma and the importance of creating your Most Valuable Plan. Learn more about this Amgen program on www.myelomaexplained.com and in[...]

More than 17 years after September 11, 2001, the list of casualties from the attack on the Twin Towers continues to grow. Cancers, respiratory conditions and other diseases continue to take their toll on those who breathed in the toxic dust that enveloped lower Manhattan.  When this became too obvious to ignore, the Zadroga Act[...]

When a multiple myeloma patient achieves a negative MRD test, it doesn’t necessarily mean that the patient is cured, but it does mean that the most sensitive testing available does not detect myeloma–which is a very good thing. Dr. Gareth Morgan from the UAMS Myeloma Institute noted that this stage is “a very good endpoint…but,[...]