Patient Power: How Can Myeloma Patients Combat Neuropathy?
How can myeloma patients combat the pain and numbness caused by neuropathy? Are there alternative…
Browsing: Life With Multiple Myeloma
Caregiving For A Loved One—What You Should Know
When a loved one is diagnosed with myeloma (or really any chronic disease), the feeling…
Myeloma 101: NCCN Guidelines for Multiple Myeloma
NCCN is a ‘must know’ acronym. It stands for the National Comprehensive Cancer Network, a…
Lenalidomide Every Other Day for Myeloma Patients with Kidney Concerns?
Kidney issues are a common complication for multiple myeloma patients. It can be present in…
Changing Careers in Midst of Myeloma…
If you have multiple myeloma, your “new normal” has most likely included some changes to…
Paying for CAR-T Treatment
It is probably fair to say that we as myeloma patients are looking forward to…
Keeping Your Immune System and Muscles ‘Young’ Against Myeloma
Scientists are baffled as they see older, physically active adults who don’t follow the traditional…
Patient Power: Does the Transplant Treatment Approach Still Have Value for Myeloma Patients?
Do myeloma patients still need transplants in the age of so many newer treatment strategies?…
Lennart Thy’s Lesson for the World
You’ve probably never heard of professional soccer player Lennart Thy (pronounced Tee) before. You’ll likely…
How Do I Exercise with Myeloma If I Am Elderly or Frail?
Having myeloma and corresponding treatment can weaken the body and your ability to exercise. Difficulty with…
Increased Distress Could Influence Negative Outcomes for Myeloma Patients
Being a cancer patient is no easy task. Whether it’s financial issues, psychological burdens, or…
Patient Power: Is Sugar Part of a Myeloma-Friendly Diet?
What is the truth regarding sugar intake as a myeloma patient? Is it okay? Should…
Spotlight on Myeloma: Multiple Myeloma Awareness Month
Amgen Oncology lit up the Southern California sky on Myeloma on Monday, March 5 in…
Can Daily Exercise Impact Transplant Candidacy for Myeloma Patients?
Jim Bond is a 20-year myeloma survivor. After his third transplant (two auto and one…
Why I’m a Myeloma Advocate, by Jenny Ahlstrom
Our family moved to Mexico in 2009 with the vision of helping Mexican entrepreneurs create…
CAR-T Cell Therapy: 9 Things To Know
Originally seen on the MD Anderson website BY CYNTHIA DEMARCO CAR-T cell therapy is a new…
Patients as Partners 2018
Being “Patient Centric” is the buzz phrase in healthcare, but what does it actually mean?…
Managing Bone Disease With Multiple Myeloma
Bone disease is a common but challenging complication of multiple myeloma. More than 80% of…
Attitude Is Everything: Moving Past a Myeloma Diagnosis
“A positive attitude through your treatment and after is most important. It’s like putting on…
Flu Season Tips for Cancer Patients
Originally seen on the Fred Hutchinson Cancer website By: Mary Engel Flu is miserable enough…
Immune System Status May Be Why Myeloma Incidence Increases With Age
A new study has found that changes to the immune system as we age may…
Blood Glucose, MGUS, Metformin and Myeloma: Part 2
Metformin as a Possible Treatment for Myeloma? I first heard about metformin as a possible…
New Year, New Outlook in Handling Your Myeloma
We’re still at the beginning of a New Year. Are you ready to continue the…
The Role of the Bone Marrow Environment in MGUS or Smoldering Myeloma Progression
Dana Farber Cancer Institute myeloma specialists are studying reasons that MGUS or Smoldering Myeloma patients…
My Myeloma and CAR T Cell Experience, by Daniel Riebow
Aloha to all. I live in Honolulu, HI and was diagnosed with IgG Kappa 17p…
Blood Glucose, MGUS, Myeloma & Metformin: Part 1
Those who have followed my articles know that I have advocated that a diet for…
Patient Power: How to Maintain Emotional Equilibrium When You Have Myeloma
How do you and your family find an emotional equilibrium, so you can live positively…
Staying On Myeloma Maintenance Therapy – How Long and Which Drug(s)?
Most myeloma patients will receive maintenance therapy as part of their treatment plan. Data has…
Myeloma 101: How Immunomodulators (IMiDs) Work in Multiple Myeloma
The story of Immunomodulatory drugs for the treatment of multiple myeloma is one of serendipity.…
Forgetful about Taking Your Medication? Download the Medisafe App.
Do you regularly forget to take your medication? Medication sitting unused in the cabinet doesn’t…
Muscles for Myeloma 2018
Fitness matters for myeloma patients who are given treatments based on their fitness levels (fit,…
Why I Keep Moving in Spite of Myeloma by Brian Helstien
BY BRIAN HELSTIEN My parents screamed at one another right up until the divorce (when…
ASH 2017: Will My Stem Cell Transplant Benefit Me?
Many myeloma patients have asked this question to themselves and to their physicians prior to…
ASH 2017: Older Myeloma Patients and Clinical Trials
There were quite the number of papers presented at ASH that lamented worse treatment outcomes…
ASH 2017: Myeloma, Bloodclots and Aspirin
Let’s start with a quick wake-up call : multiple myeloma is associated with a 9-fold…
ASH 2017: Myeloma Patients Need a Flu Shot Booster!
Researchers found in a study called the “Shivering 2 Trial” during last year’s flu season,…
ASH 2017: Case Studies Provide Little Consensus in Many Myeloma Situations
A panel of myeloma experts chaired by Dr. Brian Durie presented case studies in an…
Why Some Myeloma Patients Obtain Better Outcomes
We already know that all myeloma patients are not the same. The average patient has…
Myeloma Crowd Wins $100,000 Celgene Innovation Impact Award
Each year for the last five years, Celgene Corporation (provider of myeloma immunomodulatory drugs like…
NCI Awards Grant on Overcoming Myeloma Drug Resistance
The National Cancer Institute (NCI) awarded a $6 million grant to a team of myeloma…
Thank You for Donating on #GivingTuesday
We are so grateful to all the donations made to the Myeloma Crowd on #Giving…
Burgundy Ball – Mission for a Cure in Myeloma, February 3, 2018, Columbus, Ohio
On February 3, 2018, the Myeloma Crowd is hosting an inaugural Burgundy Ball – Mission…
Patient Power: Monoclonal Antibodies in Myeloma
Monoclonal antibodies have now been in use in the myeloma clinic since November of 2015.…
Mayo Clinic Shows Myeloma Expertise Matters for Long Term Outcomes
The Mayo Clinic performed a study to see whether treatment at centers with significant myeloma…
Understanding the Myeloma Stem Cell Transplant Process
Stem cell transplant is still the single most effective treatment for multiple myeloma, yet 45%…
Guidance for use of Pomalidomide in Relapsed/Refractory Myeloma Patients on Dialysis
A paper was just published in the Journal Clinical Pharmacology that may be of interest…
Myeloma Co-Pay Assistance Plans Faltering is a Crisis for Some Patients
BY GARY PETERSEN Our healthcare system is broken and another example of this is in…
The Lack of Sleep and Effects on Cancer
Excerpt taken from Why We Sleep by Matthew Walker This is a completely fascinating book…
Myeloma Decision Making in the Age of CAR T Cell Treatments
The very recent post on the Myeloma Crowd site by Greg Brozeit about a second…
Reflections on Myeloma Clinical Trial Eligibility Criteria
BY JIM OMEL, MD Every clinician and all educated patients realize the value of myeloma…