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Life With Multiple Myeloma

Patient Power: Tips for Coping As A New Myeloma Patient

February 19, 2019

Patient Power hosted a recent interview with a panel of multiple myeloma patients to discuss valuable advice to help others navigate their journey with cancer. The 7 myeloma patients offered many tips for coping with a new myeloma diagnosis: Advocate for Yourself It’s important to advocate for yourself in more than just your health. Myeloma[...]

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Life With Multiple Myeloma

How to Pay For Your Myeloma Treatment? (Part II: When You Have Private Insurance Or No Insurance)

February 10, 2019

So you have multiple myeloma?  Most people have never heard of myeloma, so if you are a typical patient, it’s usually a shocking and overwhelming diagnosis. It becomes a journey, including a maze of  financial worries.  This blog post is meant to assist you in getting through this financial maze! Usually, people obtain private insurance[...]

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how to pay

Life With Multiple Myeloma

The Opioids Crisis and Its Unexpected Victims

February 10, 2019

I remember this day like it was yesterday. This picture was taken in early spring 2012, and almost became the cover of my book “A Pilgrimage without End, How Cancer Healed my Broken Heart.” A friend and I decided to climb to the top of Red Mountain. Red Mountain is a prominent summit near the[...]

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Life With Multiple Myeloma

How to Pay for Your Myeloma Treatment??

February 2, 2019

C0-Pay Assistance – The Myeloma Patient Life Raft I have heard from many patients in the United States and they frequently voice fear and concern on how they will afford their medications, doctor and hospital bills. This should not happen in the richest county in the world, and I believe most people can afford treatment[...]

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co-pay

Life With Multiple Myeloma

The Stand Up To Cancer (SU2C) 2019 Scientific Summit (With a New Myeloma Dream Team)

January 31, 2019

Stand Up To Cancer (SU2C) hosted it’s 9th annual Scientific Summit in Santa Monica, CA. SU2C is a non-profit funding important cancer research and was started in 2008 by a group of women who had been affected by cancer and believed that by merging the resources of the media and entertainment industries into a single operation[...]

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SU2C

Life With Multiple Myeloma

Myeloma Crowd Round Table Expert Videos: Scottsdale — October 14, 2018

January 28, 2019

On October 14, 2018, a Myeloma Crowd Round Table meeting was held in Scottsdale, AZ at the Mayo Clinic featuring three myeloma experts, including: Rafael Fonseca, MD, Mayo Clinic Scottsdale Gareth Morgan, MD, FRCP, FRCPath, PhD, University of Arkansas Myeloma Institute Leif Bergsagel, MD, PhD, Mayo Clinic Scottsdale Multiple Myeloma: A Historical Perspective Dr. Leif[...]

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Life With Multiple Myeloma

Patient Power: Knowledge of Evidence-Based Medicine with Cherie Rineker

January 24, 2019

Multiple myeloma advocate Cherie Rineker has been a myeloma patient for 6 years. Although she has received many treatments that fall under the category of modern medicine, Rineker’s background is based in holistic health.  “I thought doctors and medicine were evil, because I had been taught that by my mother…since I was a little kid,[...]

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Life With Multiple Myeloma

Creating Your Most Valuable Plan (MVP) in Multiple Myeloma with David Winfield and Don Baylor Jr.

January 23, 2019

Being proactive about your myeloma care is essential in getting your best outcomes. The Myeloma Crowd interviewed Dave Winfield and Don Baylor Jr. to share how Don Baylor handled the highs and lows of multiple myeloma and the importance of creating your Most Valuable Plan. Learn more about this Amgen program on www.myelomaexplained.com and in[...]

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most valuable plan

Life With Multiple Myeloma

September 11: No Expiration Date for Those Near Ground Zero

January 16, 2019

More than 17 years after September 11, 2001, the list of casualties from the attack on the Twin Towers continues to grow. Cancers, respiratory conditions and other diseases continue to take their toll on those who breathed in the toxic dust that enveloped lower Manhattan.  When this became too obvious to ignore, the Zadroga Act[...]

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Life With Multiple Myeloma

Patient Power: Is Maintenance Therapy Necessary for MRD Negative Patients?

January 14, 2019

When a multiple myeloma patient achieves a negative MRD test, it doesn’t necessarily mean that the patient is cured, but it does mean that the most sensitive testing available does not detect myeloma–which is a very good thing. Dr. Gareth Morgan from the UAMS Myeloma Institute noted that this stage is “a very good endpoint…but,[...]

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