Living with Myeloma also means living with an increased risk of infections, especially upper respiratory infections and those infections are tougher to control and treat as our immune systems are weakened by prolonged treatment with our myeloma meds and stem cell transplants. Out of control respiratory infections are a leading cause of death of multiple[...]

  Written by Glori Traeder   We just finished Terry’s 100 day post stem cell transplant appointment with Dr. Jacob Laubach at Dana Farber Cancer Institute. He has had a great recovery, he is feeling very well and has “pristine” lab results. Now on to maintenance.   After hearing the terrifying news that Terry had[...]

On September 28, 2019, a Myeloma Crowd Round Table meeting was held in Seattle, Washington at the Fred Hutchinson Cancer Research Center featuring six myeloma experts, including: Dr. Edward Libby, Seattle Cancer Care Alliance, Seattle, WA Dr. Leona Holmberg, Seattle Cancer Care Alliance, Seattle, WA Dr. Faith Davies, NYU Perlmutter Cancer Center, New York, NY[...]

By Brian & Elise Martin In June of 2017, I was diagnosed with active multiple myeloma (MM) after having been followed by the Dana Farber myeloma oncology team for MGUS/smoldering myeloma for 3 years.  I was lucky to have been followed at Dana Farber for that time, after my primary care physician picked up abnormal[...]

  The Myeloma Crowd Research Initiative (MCRI) is a new approach to funding cancer research; combining the skill and knowledge of leading myeloma specialists with the patient perspective and supportive patient social communities to select and fund promising research projects in myeloma. Our goal is to find and fund a cure for multiple myeloma.  One[...]

It has been a difficult time in the past few weeks. We have lost three incredible myeloma patient advocates who have helped their fellow myeloma patients in their own unique way. My heart hurts. I am honored to have known them all and have found it difficult in the past few days to find the[...]

  The Myeloma Crowd Research Initiative (MCRI) taps into the power of crowdsourcing and crowdfunding to find and fund the best ideas, research and clinical applications leading to new myeloma treatments or potential cures. Currently, the MCRI is funding three research projects:  Dr. Chung, MD, PhD – Creating an Immune System Signature Dr. Rodriguez, MD[...]

  The Myeloma Crowd Research Initiative (MCRI) taps into the power of crowdsourcing and crowdfunding to find and fund the best ideas, research and clinical applications leading to new myeloma treatments or potential cures. Currently, the MCRI is funding three research projects:  Dr. Chung, MD, PhD – Creating an Immune System Signature Dr. Rodriguez, MD[...]

It is a well-established fact that multiple myeloma patients are at an increased risk for negative outcomes following the onset of infection and that includes dental infections. That, by itself, should be more than enough reason by itself to make doubly sure that we practice good dental/oral health and that we remain on a ‘first[...]

Earlier detection of multiple myeloma before bone damage occurs extends lives, according to a Swedish study presented at the 17th International Myeloma Workshop.  In the study, researchers used the Swedish Cancer Register to gather information on 14,013 myeloma patients such as birthdate, myeloma diagnosis date, fractures and death dates. A model was used to estimate[...]