Eclipse Camp 2017 in Rexburg, Idaho, August 19-21, 2017
To date, the Myeloma Crowd Research Initiative has raised $477,000 towards our $500,000 goal. The…
Browsing: Life With Multiple Myeloma
Cancer Distress Coach Mobile App
Have you or a loved one experienced distress along the cancer journey? Most patients and…
Beginning Myeloma Treatments Impact the Achievement of MRD-negative Goal
BY PAUL KLEUTGHEN The current issue of the Journal of Clinical Oncology reports more interesting research…
Patient Power: The Myeloma Life
BY ERIC HANSEN They say the most stressful life events are moving to a new…
Preventing Infections After Bone Marrow Transplant
According to Cancer Therapy Advisor, “Infection is a known risk for early death among patients…
Talking About Death
BY CHERIE RINEKER Yesterday I saw my oncologist. As many of you know, I have…
Malnutrition Among Cancer Patients
HemOnc Today article referenced. Good nutrition is important – especially if you are battling cancer. Cancer…
Myeloma 101: What is a “Line” of Therapy in Multiple Myeloma?
Many myeloma clinical trials include approval criteria based on the number of “lines” of therapy…
Considerations on Cost and Convenience of Multiple Myeloma Therapy
If you have multiple myeloma, you’re certainly familiar with spending time in the clinic. Some…
Gaining INSIGHT into Myeloma Treatment Effectiveness
BY JIM OMEL, MD We are very fortunate in myeloma to have good options for…
Hope vs. Hype in New Cancer Therapies
Over the last few years, cancer patients have become ever hopeful that a cure is…
Using Artificial Intelligence to Fight Multiple Myeloma
Original video found on “60 Minutes” The CBS News program “60 Minutes” highlighted artificial intelligence and…
Donating Platelets Can Save a Cancer Patient’s Life
Chemotherapy has many side effects, and one of those includes lowering the blood count in…
September 30, 2017, Myeloma Crowd Round Tables: New York, NY
Myeloma Crowd Round Tables are day-long meetings that provide patients and caregivers updated information so…
Myeloma 101: When Does Smoldering Myeloma Become Active Myeloma?
Smoldering myeloma is a precursor stage of multiple myeloma. Historically, smoldering myeloma patients have not…
Generic Drugs for Multiple Myeloma: Biosimilars
BY PAUL KLEUTGHEN Over the years we have become familiar with generic drugs, approved by…
Cost of Care: ASH Applauds Access to Treatment Bill
This Press Release was originally published by ASH. ASH President Applauds Introduction of Patients’ Access to Treatment…
Myeloma 101: Summer Fun and Safety for Cancer Patients
Summer has officially begun! It’s a great time to relax and enjoy the beautiful weather…
Medicare and the Cost of Multiple Myeloma Drugs
BY PAUL KLEUTGHEN The median age for multiple myeloma patients ranges between 65 and 75,…
A Cancer Caregiver’s Open Letter to Family and Friends: Please Understand, Life After Cancer is Different
Every patient agrees that once you’ve been diagnosed with cancer, there is no going back…
Muscles for Myeloma Columbus Run Raises $30,000 for Multiple Myeloma Research
The Myeloma Crowd hosted it’s first Muscles for Myeloma Columbus 5K and 1 Mile Race,…
Myeloma 101: How To Pick A Multiple Myeloma Doctor
Choosing a doctor to treat your multiple myeloma is one of the most important decisions…
Fighting Cancer Is Hard. 15 Tips for Living With Chronic Illness
BY KIM GILES Find the original article on KSL. CC Scott said, “The human spirit…
Living Long-Term With Myeloma Part 2: Renal Function
This is the second in a series based on “Guidelines for screening and management of…
Is There one Sugar That is Better (or less bad) Than Others for Cancer Patients?
Scientific research is inconclusive on whether sugar impacts the growth of cancer. It doesn’t mean,…
Normalcy and Myeloma Remission
BY YOLANDA BRUNSON-SARRABO A cancer survivor understands the importance of hearing the word “remission”. The…
Coping With a Parent Who Has Cancer
BY ALLYSE SHUMWAY October 3 – the day I found out my Dad had cancer.…
Policy and Politics: What Cancer Advocates Must Understand
BY GREG BROZEIT “Public policy” is often a misunderstood concept. Everyone thinks they know what…
Helping Others with Myeloma……Passing It On
BY JIM OMEL, MD While myeloma is a devastating and mainly incurable cancer, we now…
Muscles for Myeloma: Your Healthier and Happier Self in 2017
Thanks for joining Muscles for Myeloma in 2017! During this year’s campaign, almost 20,000 of…
How and When To Fight for Drug Access for Myeloma Care
Have you ever been denied coverage by your insurer? Host Andrew Schorr and Stacey Worthy…
Can One Doctor Manage Your Myeloma?
BY YOLANDA BRUNSON-SARRABO Managing your myeloma diagnosis can be one of the most stressful day-to-day…
Muscles for Myeloma: Better Fitness Means Longer Life for Myeloma Patients
BY DANNY PARKER The title of the column should help you to be motivated. But…
High-Risk Multiple Myeloma Patients Benefit from Aggressive Treatment
Dr. Sagar Lonial of Emory University’s Winship Cancer Institute recently discussed his paper on how…
Muscles for Myeloma: Exercise After Stem Cell Transplant
BY DANNY PARKER The day after my stem cell transplant, my nurse practitioner came into…
Muscles for Myeloma: Don Wright is Onto Something
Join us for Muscles for Myeloma in April by registering here. BY DANNY PARKER Don…
Improving the Cancer Patient Experience by Listening to Patients at MD Anderson
Original article found on eHealthcare Strategy by Jane Weber Brubaker Note: Healthcare facilities can learn much…
The Story of The Mutant and The Myeloma Beast!
BY DON BEHLER Long before any memory could imprint itself into my consciousness, my infant life…
Muscles for Myeloma: Rest Up or Get Moving? Studies on Exercise and Myeloma Show it’s Time to Move.
Join us for Muscles for Myeloma in April by registering here. BY DANNY PARKER In…
Muscles for Myeloma: Interleukin-6, Myeloma and Exercise
Join us for Muscles for Myeloma in April by registering here. BY DANNY PARKER While…
Riding the Myeloma Roller Coaster Part 2: Patient Tips on How to Cope
How do your myeloma friends cope with the emotional ups and downs of myeloma? They…
Don’t Obsess About Cancer Causes
BY GREG BROZEIT Researchers found that two thirds of cancer-causing cell mutations occur because of…
Keeping Up Appearances and Myeloma
BY YOLANDA BRUNSON-SARRABO Isn’t having myeloma draining? Whether it’s staying on track with your meds…
How To Thank Your Myeloma Specialist During Myeloma Awareness Month
Our myeloma specialists work tirelessly to care for us and many also perform research for…
Muscles for Myeloma: Myeloma is not a Sprint, it’s a Marathon
Muscles for Myeloma is an open fitness campaign you can join through April 30, 2017.…
NIH Budget Slashed in Trump Budget Proposal
BY GREG BROZEIT The Trump administration’s federal budget blueprint for fiscal year (FY) 2018 includes…
Living Long-Term With Myeloma Part 1: Infections, Immunity and Vaccines
This is the first in a series based on “Guidelines for screening and management of…
Columbus, Ohio Event Leads Way for African American Myeloma Patients
BY GREG BROZEIT “In the audience, I could see and feel memories of my grandparents…
Why Myeloma Patients Need Exercise
BY DANNY PARKER You need to exercise. Not only do you need to listen carefully…
Who Knew Feb 28th Was RARE DISEASE DAY? I Didn’t! We Must COME TOGETHER!
BY GARY PETERSEN I was contacted by Anna Suarez who wanted to start a partnership…