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    • HealthTree
    • Life With Multiple Myeloma
    • Oct 02, 2019

    Myeloma Crowd Launches a Psoriasis / Multiple Myeloma Study Using Its HealthTree® Platform

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As seen on PRNewswire

HealthTree IRB-Approved Data Study to Identify Potential Correlations Between Diseases

SALT LAKE CITY, Oct. 2, 2019 /PRNewswire/ — The Myeloma Crowd™, a division of the CrowdCare Foundation, today announced the launch of a new study to identify correlations between psoriasis and multiple myeloma. Psoriasis is an auto-immune disease of the skin and multiple myeloma is a rare blood cancer in which the cancer has escaped the immune system.

Participants will join the study via the HealthTree® platform, a new online tool that helps multiple myeloma patients find their best myeloma treatments and accelerate research toward a cure. There are currently more than 4,500 myeloma patients registered in HealthTree.

“This study demonstrates the importance of HealthTree as a tool for patients to connect with opportunities that could help them directly and accelerate a cure,” said Myeloma Crowd founder and myeloma patient Jenny Ahlstrom. “HealthTree has been designed as a model for curing disease by leveraging the crowd, starting with myeloma with the intent of expanding to other cancers and beyond.”

Research shows that multiple myeloma growth and bone damage can occur through activity of the interleukin-17 pathway. IL-17 is also a known treatment target in psoriasis, with several anti-IL-17 monoclonal antibodies currently FDA-approved as psoriasis therapy.  Other joint cytokines and targets may be applicable.

Dana Farber Cancer Institute researchers performed initial work assessing the utility of anti-IL-17 psoriasis mediations to treat multiple myeloma in mouse models. Further research is needed to identify possible connections between the two diseases.

The Myeloma Crowd invites all multiple myeloma patients with psoriasis to join this important study by registering in HealthTree and adding their psoriasis diagnosis to their full health profile.

HealthTree was developed by Myeloma Crowd founders Jenny Ahlstrom, who is also a former Systems Engineer for IBM, and her husband Paul Ahlstrom, an investor and entrepreneur. HealthTree is free for myeloma patients.

To join the psoriasis/myeloma study, create a patient profile on www.healthtree.org. Please note if you have psoriasis in the Full Health Profile and choose to join study by clicking the Accelerate Myeloma Research tile and selecting Yes on the Psoriasis survey question.

About Myeloma Crowd/CrowdCare Foundation

The Myeloma Crowd is a division of the CrowdCare Foundation, a patient-driven 501(c)3 non-profit organization. The Myeloma Crowd provides patient education, advocacy and research funding for multiple myeloma. www.myelomacrowd.org.

SOURCE Myeloma Crowd: CrowdCare Foundation

About Author

Jenny A

Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio and the CrowdCare Foundation.

18 Comments

  1. Anne-Marie Olmedo October 6, 2019 at 8:13 pm

    I have not been diagnosed with psoriasis however,prior to being diagnosed with multiple myeloma i had a terrible experience with my feet., Saw two different doctors regarding this matter and really they just passed it off to eczema. It never was like eczema, it started with painful cramps, passed off as plantar fasciitis. But I was never satisfied with this answer, I suffered with it for over two years if not longer. My feet looked like rocks and was miserable. I let my insurance run out and in 2014 I was diagnosed with MM. I still felt my like was not the same from 2011. I do not have the classic symptoms of psoriasis., But I am very interested in this subject. and probably could not participate since I have never been formally diagnosed with psoriiasis. Just grasping for answers.

    • Jenny A
      Jenny A October 8, 2019 at 2:01 pm

      Anne-Marie, we are all looking for answers for sure. If you do get a diagnosis of psoriasis, please join us. I highly suggest you join HealthTree anyway, since the purpose of this tool is to do just what you want to do – find other patients with a similar situation and share learnings. If we all share our MM story, we are going to learn things that will help one another!

  2. Sonja October 8, 2019 at 3:49 pm

    Hi there,
    I subscribed to this site due to my husband being diagnosed with MGUS. Reading that there might be a connection between psoriasis and myeloma kind of scared me a little , as I have a scalp psoriasis and have been having pains in my lower left leg (currently waiting to be seen by neurologist) and joints on my right hand (hoping to be psoriatic arthritis.
    I would love to hear more about this so will keep an eye on your articles.

    Thank you
    Sonja

    • Jenny A
      Jenny A October 9, 2019 at 9:55 am

      Sonja, I would not be worried about having myeloma because there may or may not be a connection between these two diseases. Both are auto-immune disorders and may share a similar pathway. If your husband has MGUS I suggest that he join the Dana Farber PCrowd study (https://pcrowd.dana-farber.org/). This is a study where he can send in bone marrow or blood samples periodically. Dr. Irene Ghobrial is in charge of this study and she is awesome!

  3. Francine Federici October 8, 2019 at 4:23 pm

    I do not have psoriasis, but for almost 2 yrs before my diagnosis w/MM I had the worst skin rashes ,itchy,just awful took over my body &my “brain “,truly believe there is a connection .

  4. Isobel Todd October 8, 2019 at 5:05 pm

    I have IgG lambda MGUS rather than MM. However, I had psoriasis as a child that cleared at Puberty.

    I had Guillian Barre at age 21 from which I recovered. I then developed a begnin cyst on my Thyroid and had a lobectomy.

    In my early 50s I developed osteoarthritis in my left ankle. At age 54 I was diagnosed with late onset Asthma, and approximately 5yrs ago Hypothyroidism.
    2 years ago aged 61 whilst investigating gynaecological issues there was an incidental finding of Kidney Cancer in the left kidney (6cm renal cell carcinoma) excised with negative margin. Histology of the kidney also found a begnin angiomyolipoma.
    The recent histology on my gynaecological issues suggest I may possibly have a condition – osseous metaplasia of endometrium.

    • Jenny A
      Jenny A October 9, 2019 at 10:02 am

      Isobel, you have had it very rough! If you have MGUS you can join the PCrowd study being run at Dana Farber. (https://pcrowd.dana-farber.org/). This is a study where you can send in bone marrow or blood samples periodically. They are working to determine why certain people progress to active myeloma from precursor conditions. Dr. Irene Ghobrial is in charge of this study and she is awesome!

  5. P Stepp October 10, 2019 at 6:42 am

    I have PS/PSA. I suffered every symptom severely until I was put on Cosentyx, an IL17 blocker. My Sister has recently been diagnosed with MM and is undertaking chemo at this time. I am hopeful that research will reveal that an IL 17 blocker may be helpful to MM sufferers or at least be a gateway to a cure.

    • Jenny A
      Jenny A October 10, 2019 at 11:01 am

      Thanks and we hope so too! Please have your sister join http://www.healthtree.org. Psoriasis can be genetic, so even if she has mild psoriasis she can join this study. If she doesn’t have psoriasis, she will learn an incredible amount about myeloma through HealthTree University, which will be the largest online “university” ever compiled for myeloma patients. We are in the process of producing over 30 courses with 600 lessons taught by over 75 myeloma experts. It will be amazing! The first three classes are available today inside of HealthTree under “Learn About Myeloma”. In HealthTree, she can also track her disease, see personally relevant treatment options, find clinical trials and find financial resources. As a patient myself, it’s what I wanted when I was diagnosed.

  6. Susan J October 10, 2019 at 6:12 pm

    I have had psoriasis for many years on and off and six years ago found I had MGUS after a blood test so each year I have the SPEP test done. So far it has not shown any new findings so it has remained stable. I also have PSA and RA.

    • Jenny A
      Jenny A October 11, 2019 at 1:57 pm

      Susan, you are invited to join us on this study. Let’s see if there is a correlation! I have both as well.

  7. Pam Rogers October 11, 2019 at 5:32 am

    I have psoriatic arthritis, on Enbrel and Methotrexate. Also have MGUS with stable numbers so far. Also diagnosed with fibromyalgia. Would I be a candidate for your study?

  8. Elsie October 12, 2019 at 12:39 pm

    .I have had psoriasis, mainly in the scalp, for years. I was diagnosed with PA in 2017. When referred to Rheumatologist, blood work indicated that I have MGUS. Currently, I am taking Otezla for PA.

    • Jenny A
      Jenny A October 14, 2019 at 10:36 am

      Elsie, we would love to have you join the study! I am also participating. If you could like to join, please go to http://www.healthtree.org and create an account. Enter in as much info as you can and we will be in touch to help you with the psoriasis and myeloma-related questions.
      Best, Jenny

  9. Janice Wheeler (self) October 13, 2019 at 6:43 am

    I was diagnosed with psoriasis at 21. Now 67. I was diagnosed with mugs 11 years ago. So far relatively stable. What is involved in the study? Do I need to work with my oncologist?

    • Jenny A
      Jenny A October 14, 2019 at 10:34 am

      Janice, We are doing an observational study, or asking patients with both diseases a set of questions to compare our outcomes and responses. We will then share that information with you. You first join http://www.healthtree.org. Fill out as much information as you can and we will contact you once you do that! If you have questions, I am also participating in this study and can walk you through it. Best, Jenny

    • Jenny A
      Jenny A October 14, 2019 at 10:34 am

      And no, you won’t need to work with your oncologist for this.

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