Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio and the CrowdCare Foundation.
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Living with Myeloma also means living with an increased risk of infections, especially upper respiratory infections and those infections are tougher to control and treat as our immune systems are weakened by prolonged treatment with our myeloma meds and stem cell transplants. Out of control respiratory infections are a leading cause of death of multiple […]
Myeloma Crowd has made it a priority to help the ASH participants interested in multiple myeloma to find the best and most relevant myeloma abstracts from the total of over 1000 myeloma abstracts listed. Each year over 30,000 Doctors, Researchers, Patient Advocates, and Patients attend the ASH conference, and to say it is confusing and overwhelming […]
When should myeloma vaccines be used for patients? Dr. Syed Abbas Ali, MD of Johns Hopkins Medicine tells us that it’s usually when there is a low tumor burden, like after stem cell transplant or when patients are on maintenance and their myeloma is under control. Dr. Ali shares his Phase II study of a […]