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December 8, 2018
David Chung, MD, PhD Memorial Sloan Kettering Cancer Center Interview Date: November 19, 2018 Summary Why do some multiple myeloma patients relapse early after stem cell transplant while others stay in remission for many years? The patient’s immune system may be a key factor. David Chung, MD, PhD of Memorial Sloan Kettering Cancer Center was[...]
November 18, 2018
The first Myeloma Crowd Research Initiative (MCRI) successfully raised $500,000 for two immunotherapy research projects for high-risk myeloma (CAR T and T cell treatments). Now, the MCRI will fund research to match the right treatment with the right patient at the right time. A small fraction of multiple myeloma patients may already be cured[...]
November 16, 2018
Monday, November 19, 2018 @ 10 am Pacific, 11 am Mountain, Noon Central, 1 pm Eastern Call In by Phone to Listen Live: (347) 637-2631 or Listen Live Via Computer Why do some multiple myeloma patients relapse early after stem cell transplant while others stay in remission for many years? The patient’s immune system may be[...]
December 7, 2017
In 2015 the Myeloma Crowd had a hypothesis: If patients collaborated with myeloma experts, we could accelerate a cure. Our dream has become a reality with the success of the first Myeloma Crowd Research Initiative (MCRI) campaign. Our recent announcement was shared here. The MCRI is the first patient-led crowdsourcing and crowdfunding initiative for multiple myeloma[...]
May 25, 2017
The Myeloma Crowd Initiative selected two proposals it has selected for the MCRI crowdsourcing and patient-led funding initiative. This is the first time that a united group of patients have joined with myeloma researchers to find and fund a cure for high-risk myeloma. “The study of high-risk myeloma should be one of the top priorities[...]
September 30, 2016
Richard Hite is a myeloma patient who can’t wait for a cure. Can you? Because only 1 in 12 research proposals are funded by the NCI, we decided that it was time patients pitch in to help speed a cure for themselves. It typically takes 10 years to bring a new treatment to the clinic.[...]
June 3, 2016
BY LIZZY SMITH Every morning in Africa, a gazelle wakes up. It knows it must run faster than the fastest lion or it will be killed. Every morning a lion wakes up. It knows it must outrun the slowest gazelle or it will starve to death. Not long ago, I heard Dr Rafael Fonseca of Mayo[...]
March 18, 2016
For Wendy Reif, jewelry making will forever be linked with myeloma. It all started in 2014, not long after Wendy’s husband learned he would start treatment for multiple myeloma (he was diagnosed as “smoldering” two years prior). That’s when Wendy took a jewelry making class as “caregiver therapy,” joining a few of her closest friends[...]
November 23, 2015
The Myeloma Crowd Research Initiative (MCRI) is off to a fabulous start, so far raising $500,000. Our next project is an online fundraising auction. We are asking you, our myeloma family, to consider donating something of value for this critically important project. Here’s how it works: 1. Send a description and quality photo of the[...]
November 9, 2015
It’s been a great couple of weeks as thousands of you have read, watched, posted and shared to promote multiple myeloma awareness. Does greater awareness mean better results? We say YES, IT DOES! In a few short days, this is what we’ve accomplished together: We’ve shared more about multiple myeloma to a broader community so[...]
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