/
/
Give Me An L (Leukemia), Give Me an L (Lymphoma), PLEASE, PLEASE, PLEASE Give Us An M (Myeloma)!
Give Me An L (Leukemia), Give Me an L (Lymphoma), PLEASE, PLEASE, PLEASE Give Us An M (Myeloma)! image
Give Me An L (Leukemia), Give Me an L (Lymphoma), PLEASE, PLEASE, PLEASE Give Us An M (Myeloma)!
Posted Mar 11, 2016

BY GARY PETERSEN Picture March is Myeloma Awareness Month! First and foremost, I love the LLS (Leukemia and Lymphoma  Society), and think they do a great service to blood cancers in general. They provide up to $10,000 in copay assistance to myeloma patients, twice that of other covered cancers and fund a considerable amount of research.  However, myeloma does not get any billing in the societies name even though it is the second most common blood cancer, and one of the biggest problems is an almost lack of awareness.  Few people have ever heard of myeloma.  From my last blog post, leukemia gets 2.2 times what their years of lost lives would justify. Lymphoma gets 1.4 times what their years of  life lost would justify. Myeloma gets just 80% of what it would justify and closer to 40% if deaths were recorded correctly.  Myeloma is the most under-reported cause of death for all cancers!  The LLS's outreach and education have been outstanding tools and conduits for improved research spending for both leukemia and lymphoma. It has greatly impacted awareness as well. Everybody has heard of leukemia and lymphoma, but people only hear about myeloma after being diagnosed by a very skilled General Practitioner or savvy oncologist who connects the dots. It is my belief that the LLS is one of the most visible cancer societies in the nation and maybe in the world. Being part of the name would go a long way to get people to at least hear of myeloma and learn more about it on the LLS site and in general.  As Pat might have said "Myeloma Gets NO RESPECT"!  Dr. Morgan of UAMS says that the lack of awareness in the community of  General Practitioners, oncologists, and hematologists is scandalous. Twenty percent of myeloma patients die within the first 2 months of diagnosis because of late diagnosis or misdiagnosis.  LLS, you can help save lives with a simple M. PLEASE, PLEASE, PLEASE, GIVE MYELOMA PATIENTS AN M! GARY PETERSEN(editor@myelomasurvival.com)

The author Gary Petersen

about the author
Gary Petersen

Gary is a myeloma survivor and patient advocate. His work centers around helping patients live longer by helping them to find facilities who are beating the average survival statistics. You can find Gary's site at www.myelomasurvival.com and follow him on Twitter at @grpetersen1

More Life with Myeloma Articles

Get the latest thought leadership on Myeloma delivered straight to your inbox.

Subscribe to the weekly "HealthTree Community for Myeloma Newsletter" for Myeloma news, life with Myeloma stories, Myeloma clinical trials, Myeloma 101 articles and events with Myeloma experts.

Thanks to our HealthTree Community for Myeloma Sponsors:

Genentech
Abbvie
Bristol Myers Squibb
Janssen Oncology
GSK

Follow Us

facebook instagram twitter youtube

Copyright © 2022 HealthTree Foundation. All Rights Reserved.

The HealthTree Foundation / Myeloma Crowd is a qualified 501(c)(3) tax-exempt organization. Tax ID 45-5354811

 https://www.guidestar.org/profile/45-5354811