What to Do at the Time of Relapse
What to Do at the Time of Relapse image
Mar 25, 2021 / 11:00AM - 12:00PM MDT
Plasma Cell Leukemia Chapter

Event Description

Listen and learn with us as we explore what options were or are given to us at the time of relapse. What are your clinicians telling you? What have you experienced? Knowing how to approach your treatment at the time of relapse allows you to be both a more empowered and prepared patient when that time comes. 

Schedule & Agenda

person
Introductions
11:00AM
Audrey Burton-Bethke
Audrey introduces the agenda and our featured speaker, Paul Kleutghen.
person
Group Discussion on Relapse
11:05AM
Audience
The audience discusses relapse experiences, concerns, and other related topics.
person
Selinexor Study
11:50AM
Paul
Paul shares a case study in which a PCL patient reacted positively to selinexor.

Speakers & Moderators

The panelist Paul Kleutghen
Paul Kleutghen

I am a patient diagnosed in 2014 with primary plasma cell leukemia (pPCL), a rare and aggressive variant of multiple myeloma and have been very fortunate to find treatment at the division of Cellular Therapy at the Duke University Cancer Institute. My wife, Vicki, and I have two adult children and a grandson who is the ‘light of my life’. Successful treatment has allowed Vicki and I to do what we love best : traveling the world, albeit it with some extra precautions to keep infections away. My career in the pharmaceutical industry has given me insights that I am currently putting to use as an advocate to lower drug pricing, especially prices for anti-cancer drugs and, very specifically, CAR-T therapies, with recent contributions posted by Health affairs, the Institute for Clinical and Economic Review and the Centers for Medicare and Medicaid Services.

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The panelist Audrey Burton-Bethke
Audrey Burton-Bethke

Audrey joined the Myeloma Crowd as the Community Manager in 2020 after previously working in the nonprofit field for 4 years as a director of Fundraising and Development. She graduated from BYU with a major in Spanish and Nonprofit Management. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

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