By Jennifer Ahlstrom | Posted - May 19th, 2016

 

 

 

 

What are the Most Important Issues Patients Face During Stem Cell Transplant? Let Your Voice Be Heard in This BMT InfoNet Survey.

What are the most critical issues you face as a patient undergoing stem cell transplant? It's time to share your experience so researchers know how to prioritize their work to help other patients.

The National Institutes of Health will host a two-day workshop in June to define urgent needs of bone marrow and stem cell transplant survivors that need to be addressed by further research.  In order to bring the patient’s perspective to the conversation, BMT InfoNet is conducting a survey of transplant survivors and family members to determine what they believe are most important and poorly addressed issues after transplant.

Susan Stewart from BMT InfoNet as well as myeloma and transplant survivor John Killip will participate on a patient advocacy panel at which the survey results will be shared.

Please take a minute to complete this survey so that YOUR experience and opinions are included in the survey.  The identity of everyone who responds will remain confidential, but responses will be shared with more than 100 researchers who attend the meeting.

 Complete the Transplant Survey

stem cell transplant

 
Jennifer Ahlstrom
About the Author

Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation.

ADVERTISEMENT
ADVERTISEMENT
ADVERTISEMENT
 

Add a Comment

 

MORE MYELOMA CROWD NEWS

Thanks to our Myeloma Crowd Community sponsors:

.