By Jennifer Ahlstrom | Posted - Feb 20th, 2020

 

 

 

 

What We Are Learning about Multiple Myeloma Together: HealthTree Reports and Real World Data

As myeloma patients ourselves, we know how hard it is to navigate multiple myeloma, so we built HealthTree, a tool to help you navigate myeloma successfully. When you create a complete HealthTree profile, you can:

  • Track your myeloma in a single place
  • See personally relevant treatment options you could consider for every stage of your myeloma
  • Find clinical trials you are eligible to join
  • Learn about myeloma in HealthTree University
  • Get help - find a specialist, find a Myeloma Coach and find financial help

This is just the beginning of the power of HealthTree. Now that thousands of myeloma patients are using the tool, our shared myeloma stories will help us learn so much more and help us find a faster cure for multiple myeloma.

Thank you to all who have completed your profiles! We have now produced over 55 basic reports that you can find in the Reports section in HealthTree. Many of these reports are pulling anonymous data from questions you answered in the Full Health Profile section.

If you haven't filled it out yet, please complete the your Full Health Profile here and watch the numbers change on the reports while you do! These are real-time reports that change as each of us add to our collective learning.

Here are some examples:

Myeloma Family Report

Myeloma Bone Fractures

Myeloma Chain Frequency

© Myeloma Crowd and HealthTree. May not be reproduced without permission.

We are adding new reports every week and we are excited to create a platform that can provide this type of free information back with you for free.

We also offer a way for myeloma researchers to ask study questions of the myeloma patient community for FREE. Because the HealthTree platform has received Institutional Review Board (IRB) approval, the researchers are now beginning to publish papers on their survey findings. We will continue to share the results back with myeloma patients who have answered the questions.

You'll be seeing more in the coming year, but we invite you to add your myeloma story to thousands of other patients who have joined HealthTree. Together, we can help accelerate a myeloma cure.

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How long will I live with multiple myeloma and is there a cure?
What is HealthTree for multiple myeloma?

 
Jennifer Ahlstrom
About the Author

Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation.

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