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    • Life With Multiple Myeloma
    • Myeloma Coach
    • Aug 07, 2019

    Who am I Now? I’m a Myeloma Coach.

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By Maddie Hunter

– What skills or beliefs do I have to bring to this current challenge I am experiencing? – What are my best options to consider?  – How do I know the best decision to make?  

As a long-time leadership coach in many types of corporate and non-profit organizations, I discovered that these questions were at the root of most of the discussions I had with my clients.  What these discussions inevitably led to was answering the big question of “Who am I now?”

When I was diagnosed with myeloma in 2001, I started asking the same questions to myself. Knowing that I learn best in the company of others, I joined the Philadelphia Myeloma Networking Group.  Acknowledging my own learning style, I delved into all the resources I could find to understand myeloma. Over these 18 years, I have received a lot of tangible help, encouragement and companionship on this uncertain journey.  Through this support, I figured out my best treatment options along with how to reinvent my professional life so I could continue to raise my son on my own.  I had many people telling me “You are not alone”.  I thrived with these partners.

When Myeloma Crowd launched the Myeloma Coach program, I immediately wanted to be a part of it.  I was drawn to the opportunity to provide to others what has been generously given to me.  I was quickly paired with someone who, like me, is eager to know, explore and reflect on what joining the myeloma community really means for her.  Unlike me, she lives in a part of the country where access to support groups and other myeloma patients is limited.  I am thrilled to be with her as she sorts out all that she needs to know to take the next steps.  Sometimes I am a guide, other times I have been a resource for understanding, but always I am honored to be a fellow patient with her, listening, sharing and learning together.

Who am I now? I am a Myeloma Coach.

The Myeloma Coach program provides individualized help for patients to navigate their disease. Myeloma Coaches are trained to help share important information with patients such as: what to expect during stem cell transplant, how to find financial resources, how to use online resources, and other sources of help. If you need help, you can find a Myeloma Coach near you or with the expertise you need. Coaches can help you in person, by phone or by computer. If you have 8 hours a month to volunteer and you have experience as a myeloma patient and want to give back, become a Myeloma Coach today. 

To find or become a Myeloma Coach, click here: 

Myeloma Coach

 

Special thanks to our Myeloma Coach sponsors: Takeda Oncology, Celgene, Amgen and Adaptive Biotechnologies

About Author

Jenny A

Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio and the CrowdCare Foundation.

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